It can be quite torturing to be sick.
It is even more torturing if the cause of the sickness is still unknown after numerous medical consultations and treatment.
This is what happened to Clement Ng. He is suffering from Peutz-Jeghers Syndrome, a rare disease, one that has less than 20 cases in Hong Kong, which also took away his father’s life.
It took more than three years for doctors to confirm that Clement is a PJS patient. He is 26 years old. At the age of 8, he underwent his first major operation. Since then, he has gone through at least five major operations. As for minor operations, Clement said he has lost count of them.
“The disease I have is rather rare and was misdiagnosed for many times or dismissed as ‘nothing wrong’, proper treatments were delayed. I only understand when I was older that the doctors did not mean to delay my treatments as it was a rare one,” Clement said.
Seeing through his life and death, Clement made a resolution to become a “Great Body Teacher”, donating his whole body as a cadaver for medical training after he passed away.
Clement hopes to help the medical community to study rare and genetic diseases so that patients in the same in the future can be diagnosed faster and reduced unnecessary pain.